Funding supports safety studies, manufacturing and clinical planning needed before applying to test the treatment in patients ...

The National Ataxia Foundation (NAF) is an organization devoted to raising awareness, supporting families, and funding research for Ataxia, a rare and progressive neurological condition that impairs ...

CHICAGO (WLS) -- The Friedrich's Ataxia Research Alliance (FARA) invites families, cyclists, and everyone else to their 5th Annual rideATAXIA Chicago event on July 24, 2016. The multi-route cycling ...

WOODBRIDGE, Conn.--(BUSINESS WIRE)--Cure Rare Disease (CRD) announced it has been awarded a $5.69 million grant from the California Institute for Regenerative Medicine (CIRM) to advance the ...

RICHFIELD, Wis. (CBS 58) -- The 4th Annual National Ataxia Bowl for a Cure will take place Sunday, Sept. 28 at Pioneer Bowl in Richfield from 11 a.m. to 4 p.m. The fundraiser supports research, ...

The FDA has granted orphan drug designation to Cure Rare Disease’s CRD-002, an antisense oligonucleotide therapeutic for the treatment of spinocerebellar ataxia (SCA), including spinocerebellar ataxia ...

RICHFIELD, Wis. (CBS 58) -- The 2nd annual National Ataxia Foundation Bowl for a Cure is scheduled to take place in Richfield aims to deliver a fun-filled bowling experience for participants of all ...

The Gehr family has always had a love and a talent for the performing arts. “I really lived a pretty unaffected life until about third grade,” said 25-year-old Michael Gehr. As a kid, Michael was what ...