Volunteers shared personal stories about life with CF while urging members of Congress to protect patients and progress.
Leaving everything behind to start over in another country was challenging. However, I never gave up on myself. My health has improved significantly over the past few years, and I am fulfilling my ...
My son wasn’t diagnosed with CF until he was an adult and needed a lung transplant to save his life. He struggled to access the care he needed and ultimately passed away. I want his story to spark ...
When I realized I hadn’t fully processed what it was like to grow up with cystic fibrosis, I turned my experiences and feelings into a story to help me better understand them. What started as a ...
My name is Schyler Kline. I am an adult with cystic fibrosis, and I am an elementary school teacher. My experience with teaching while having CF has been quite diverse over the years. Seven years ago, ...
A biorepository is a place, similar to a library or bank, where biological samples are stored for use in research. Since 2006, the Cystic Fibrosis Foundation has collected and stored samples from a ...
Cystic fibrosis has drastically changed in a single generation. Once seen as a pediatric disease, people with CF are now living into adulthood thanks to groundbreaking treatments and highly ...
I was bullied at school because my cystic fibrosis made me different from my peers. However, my perspective shifted as I got older, and I learned to embrace the unique qualities that make me who I am ...
Ten (almost 11) years ago, I became a young mom at the age of 17. Bringing my son home was such a bittersweet moment — I was so in love with him, but I knew my life as a kid was over. Two weeks later, ...
BETHESDA, Md. — The Cystic Fibrosis Foundation issued the following statement in response to the recent announcement by the National Institutes of Health (NIH) that it will set the reimbursement rate ...