I've always approached new medications with caution, concerned about potential side effects. That hesitation is why it took me several weeks to finally try Pulmozyme for the first time.

Every clinical trial must go through many layers of review, each intended to protect your safety. We go beyond what is required with additional layers of protection for CF clinical trials. At each ...

Researchers conduct clinical trials by following a protocol, a detailed plan that explains how a trial will work, what will be done during the trial, and why. All clinical trials have guidelines about ...

It is your right to know everything about your role in a clinical trial. The informed consent process will help you judge whether a CF study is right for you. The informed consent process is ongoing ...

Have questions about cystic fibrosis clinical trials? The Clinical Trial Navigator is a person who can help you get the answers you need. 2 min read The Clinical Trial Navigator is a designated person ...

Before any clinical trial begins, you will meet with the research team and have a chance to learn more about the study. You should ask as many questions as you need to understand the study purpose, ...

While relocating to a new state, my family faced some unexpected hurdles. But with the incredible support of our community, we survived the journey.

The year I turned 40, I celebrated for a week with my dearest friends and family and tried to feel grateful. The life expectancy of a person with cystic fibrosis was just 10 years at the time I was ...

During the 18 months I spent waiting for a double-lung transplant, I researched everything I could about the process. I asked post-transplant patients about the pain of the surgery, waking up, the ...

Okay! I'm about to spill some tea -- the tea about being a Black girl with cystic fibrosis. CF and I are pretty familiar with each other, so I refer to her as Cynthia Fibrosis. Cynthia and I have ...

I've been thinking of my life after Trikafta as a series of pros and cons ... like on “Friends” when Ross made a list to figure out why he should/should not date Rachel. Ross needed to decide if he ...