Trikafta® has done wonders for my health but not my waistline. I was relieved to find out, however, that I wasn't alone in my concern about my sudden weight gain and that bringing the topic up to my ...
The additional funding will support a Phase 2 clinical trial for an inhaled antisense oligonucleotide drug for people with cystic fibrosis who have the splicing mutation 3849+10Kb C-to-T. BETHESDA, Md ...
Caitlin was diagnosed with CF at 3 years old and received a liver transplant at the age of 9. She grew up in Georgia, where she volunteered for the Cystic Fibrosis Foundation Georgia Chapter over the ...
Brown to join Foundation in April 2023, bringing more than 20 years of experience in nonprofit communications and journalism, with a focus on health and science BETHESDA, Md. — Today, the Cystic ...
I’m going to preface this article by saying I’m probably not the best person in the world to give anyone relationship advice. However, I do feel like a lot of other people out there — whether you have ...
When I moved away for college, I was determined to prove that I could manage my CF all by myself. But I was thrown for a loop when I was unexpectedly diagnosed with CF-related diabetes. I thought I ...
Zachary is father to Ruth, who was born with cystic fibrosis. He is a graduate of the University of Mount Olive, and now works as a contracting officer for the Department of Defense. Zachary is also ...
Katie is an avid runner and coach who also has cystic fibrosis. Katie recently ran the Boston Marathon with the Cystic Fibrosis Foundation on a team of nine other CF runners. In 2019, Katie started ...
The Cystic Fibrosis Foundation is funding the development of a gene editing therapy that is designed to use ReCode’s tissue-specific delivery vehicle to transport gene editing cargo to the lung cells ...
Brandon is an adult with CF living in the greater Cincinatti area. He was diagnosed with CF at 6 weeks old and has a younger brother who also has CF. Brandon is a social worker who assists with the ...
The Cystic Fibrosis Foundation is providing additional funding to Arcturus Therapeutics to develop an inhaled messenger RNA therapy for CF that provides lung cells with the correct instructions to ...
Every year, teens from across the country gather to advocate for the cystic fibrosis community. The value of advocacy is tremendous, especially for a rare disease. Sometimes the people we talk to have ...
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