Dear Chair Gagnon and Members of the Banking and Insurance Subcommittee, On behalf of the more than 500 people living with cystic fibrosis in South Carolina, we write to express our support for H.

I've always approached new medications with caution, concerned about potential side effects. That hesitation is why it took me several weeks to finally try Pulmozyme for the first time.

All my life with cystic fibrosis, I had always been told to eat more fat, more calories, and more food in general. Life was a never-ending battle to keep the pounds on. When I got sick, the first ...

Anna was diagnosed with cystic fibrosis at 7 months, and credits her good health to her supportive family. Anna received her master's degree in music therapy from Appalachian State University. She is ...

As someone with cystic fibrosis, I am used to being diagnosed with a variety of health conditions. Most of the time, these diagnoses come after I have a physical characteristic I need assessed and I ...

Trikafta® has done wonders for my health but not my waistline. I was relieved to find out, however, that I wasn't alone in my concern about my sudden weight gain and that bringing the topic up to my ...

One of five children (two full siblings and two half-siblings), Patti was diagnosed with cystic fibrosis at 6 months old. She holds an associate’s degree in business administration. The recipient of ...

If you walk into your local grocery store or gas station, you will likely come across an area where lottery tickets are for sale. Along with the numerous games, you are commonly going to find a ...

The drug company Corbus Pharmaceuticals will start its next Phase 2 clinical trial to test a potential inflammation-targeting drug in people with cystic fibrosis in the first quarter of 2018. The ...

New modulators in development by the CF-specific company could provide unique treatment options for the underlying cause of cystic fibrosis for many people with the disease BETHESDA, Md. — The Cystic ...

The Cystic Fibrosis Foundation recently announced that there are almost 40,000 people living with CF in the United States. Not only are there more of us with CF, but we are now living longer. Based on ...

Dr. Alexander Elbert is the senior director of the Patient Registry program at the Cystic Fibrosis Foundation. He received his degree in Chemical Engineering from Igor Sikorsky Kyiv Polytechnic ...