Cystic Fibrosis Foundation

Giving Voice to Those Without Modulators

For those who don’t benefit from modulators, the fight against CF can feel isolating and uncertain. Five members of our community share how they’ve transformed their personal struggles into purpose — ...
Cystic Fibrosis Foundation

Why I’m Grateful After My Late Diagnosis

At 50 years old, my health began to deteriorate in ways no one could explain. For nearly two decades, I searched for answers. It wasn’t until I was 69 that I finally learned the truth: I have cystic ...
Cystic Fibrosis Foundation

Coalition Submits Statement on Modernizing Care Coordination to Prevent and Treat Chronic Disease

Chair Buchanan, Ranking Member Doggett, and Members of the Committee: On behalf of the Partnership to Protect Coverage (PPC), a coalition of nonpartisan, nonprofit patient advocacy organizations, ...
Cystic Fibrosis Foundation

Coalition Issues Statement on Congressional Inaction to Address Expiring eAPTCs

Today, 36 nonpartisan, nonprofit patient advocacy organizations issued the following statement urging Congress to secure an immediate solution to the expiration of the enhanced advance premium tax ...
Cystic Fibrosis Foundation

People With CF Are Living Longer. What Does That Mean for Our Care?

The Cystic Fibrosis Foundation recently announced that there are almost 40,000 people living with CF in the United States. Not only are there more of us with CF, but we are now living longer. Based on ...
Cystic Fibrosis Foundation

CF Foundation Invests Up to $2 Million in Nosis Bio for Potential Gene Therapy Delivery Technology

Nosis Bio, an inaugural winner of the Foundation’s Golden Ticket Competition, receives funding to further explore design of novel ligands, which are specialized molecules that could help more precise ...
Cystic Fibrosis Foundation

Unexpect the Expected: What I Learned After My Lung Transplant

During the 18 months I spent waiting for a double-lung transplant, I researched everything I could about the process. I asked post-transplant patients about the pain of the surgery, waking up, the ...
Cystic Fibrosis Foundation

Trikafta Caused My Anxiety and Depression to Return

I've been thinking of my life after Trikafta as a series of pros and cons ... like on “Friends” when Ross made a list to figure out why he should/should not date Rachel. Ross needed to decide if he ...
Cystic Fibrosis Foundation

Cystic Fibrosis Foundation Announces Steven Rowe, MD, as Next Chief Scientific Officer

Dr. Steven Rowe will support mission to cure cystic fibrosis by leading the Foundation’s research strategy, focusing on genetic therapies BETHESDA, Md. -- Today, the Cystic Fibrosis Foundation ...
Cystic Fibrosis Foundation

CF Foundation Invests Up to $9 Million in Arcturus Therapeutics to Develop a Messenger RNA Therapy

The Cystic Fibrosis Foundation is providing additional funding to Arcturus Therapeutics to develop an inhaled messenger RNA therapy for CF that provides lung cells with the correct instructions to ...
Cystic Fibrosis Foundation

A CF Diagnosis at My Age?

Being a senior older than age 65 and getting a late diagnosis of cystic fibrosis is not just a relief because you finally have a correct diagnosis, it's actually beyond comprehension. I have had a ...