On behalf of the nearly 40,000 individuals living with cystic fibrosis in the United States, we write to provide public comment on the Institute for Clinical and Economic Review’s (ICER’s) assessment ...

Food insecurity is a long-standing problem in America. According to the U.S. Department of Agriculture (USDA), food-insecure households are those with “limited or uncertain access to adequate food.” ...

The Cystic Fibrosis Foundation recently announced that there are almost 40,000 people living with CF in the United States. Not only are there more of us with CF, but we are now living longer. Based on ...

I did the research. I asked the questions. I thought I knew what to expect when I had a double-lung transplant. I was surprised by what I learned. During the 18 months I spent waiting for a ...

Prime Medicine’s prime editing technology has the potential to bring genetic therapies to all people with cystic fibrosis, ultimately paving the way to a cure. BETHESDA, Md. — Today, the Cystic ...

I've been thinking of my life after Trikafta as a series of pros and cons ... like on “Friends” when Ross made a list to figure out why he should/should not date Rachel. Ross needed to decide if he ...

In the past decade or so, I've learned that when people in the CF community find out I'm an opera singer, or that I don't use a vest as an airway clearance technique (ACT), they often assume that I ...

The year I turned 40, I celebrated for a week with my dearest friends and family and tried to feel grateful. The life expectancy of a person with cystic fibrosis was just 10 years at the time I was ...

It was the spring of 2008 when my world flipped upside down. I was 13 years old and just finishing up the 8th grade. I felt like a relatively “normal” kid, despite being diagnosed with cystic fibrosis ...

Eating is supposedly easy. Most people would say it's too easy. At some point in history among privileged people, eating became less about survival and more about pleasure. Eating more than necessary, ...

Brown to join Foundation in April 2023, bringing more than 20 years of experience in nonprofit communications and journalism, with a focus on health and science BETHESDA, Md. — Today, the Cystic ...

Okay! I'm about to spill some tea -- the tea about being a Black girl with cystic fibrosis. CF and I are pretty familiar with each other, so I refer to her as Cynthia Fibrosis. Cynthia and I have ...