I’ve spent my life navigating cystic fibrosis alongside anxiety, OCD, and depression — struggles that once led me to numb everything with alcohol until a wake‑up call changed everything. Through ...
Gene editing refers to the use of targeted molecular tools to make changes to specific DNA sequences inside cells. The most well-known example of a gene editing tool is CRISPR-Cas9. A major advantage ...
Winter was in full swing, and the air was sharp and crisp, with a very low wind chill. Walking across the parking lot dressed in full winter gear like I was preparing to climb Mount Everest, I felt ...
Born in 1987, growing up with cystic fibrosis… the future was a strange concept. Not because I didn’t dream about it. Not because I didn’t want it. Not because every movie or TV show I watched ...
JP is the vice president of clinical research for the Cystic Fibrosis Foundation and a professor of pediatric pulmonary medicine at Cincinnati Children's Hospital Medical Center. His role at the ...
Trikafta® has done wonders for my health but not my waistline. I was relieved to find out, however, that I wasn't alone in my concern about my sudden weight gain and that bringing the topic up to my ...
The additional funding will support a Phase 2 clinical trial for an inhaled antisense oligonucleotide drug for people with cystic fibrosis who have the splicing mutation 3849+10Kb C-to-T. BETHESDA, Md ...
Katherine was diagnosed with CF as a baby. She has an older brother and had a younger sister who sadly lost her battle with CF in 2010. Katherine received a lung transplant in 2010 at age 18 and ...
I’ve been a sleepy gal my whole life. If given the option to watch a movie or take a nap, I’ll choose the nap almost every time. I’m very sleep dependent. I don’t operate well if I don’t get good ...
Olivia received her master’s degree from the University of Pittsburgh and now works at UPMC Children’s Hospital. She became involved in CF research through her interest in improving access to ...
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