One of the hardest parts of working full-time with cystic fibrosis is the quiet exhaustion of navigating systems and expectations that were never designed for chronic illness.

I lived for decades struggling to breathe, adapting my life around what I thought were severe allergies. Then I was finally diagnosed with cystic fibrosis. With proper treatment and perseverance, I’ve ...

It is important to always clean and disinfect your nebulizer because you can breathe in germs through your nebulizer and risk developing a lung infection. 3 min read Nebulizers are medical devices ...

mRNA therapy would deliver a new, correct copy of CFTR mRNA to cells, allowing them to produce healthy CFTR protein. This treatment would not affect a person’s DNA or CFTR mutations. mRNA therapy is ...

The Cystic Fibrosis Foundation recently announced that there are almost 40,000 people living with CF in the United States. Not only are there more of us with CF, but we are now living longer. Based on ...

Food insecurity is a long-standing problem in America. According to the U.S. Department of Agriculture (USDA), food-insecure households are those with “limited or uncertain access to adequate food.” ...

Sheila was diagnosed with CF in her early 40s despite being very sick her entire life. Her rare mutations make it difficult to access effective therapies and assistance. Although she was listed for ...

BETHESDA, Md. — The Cystic Fibrosis Foundation issued the following statement in response to the recent announcement by the National Institutes of Health (NIH) that it will set the reimbursement rate ...

I've been thinking of my life after Trikafta as a series of pros and cons ... like on “Friends” when Ross made a list to figure out why he should/should not date Rachel. Ross needed to decide if he ...

“I don’t understand why they need to make a movie that highlights my disease.” I was once very wary of films and television series that had characters with cystic fibrosis. Medical dramas can often be ...

Persistence, resilience, and strength of character can overcome many obstacles in life. Marlene Pryson, 86, probably one of the oldest individuals living with cystic fibrosis, certainly possesses all ...