The CF Foundation Patient Registry collects information on the health status of people with cystic fibrosis who receive care in CF Foundation-accredited care centers and agree to participate in the ...

Caitlin was diagnosed with CF at 3 years old and received a liver transplant at the age of 9. She grew up in Georgia, where she volunteered for the Cystic Fibrosis Foundation Georgia Chapter over the ...

Brad was diagnosed with cystic fibrosis at birth. A four-time graduate of Mississippi College, he now works at McLaurin Attendance Center where he has been teaching high school and college mathematics ...

Diagnosed with cystic fibrosis at age nine, Kayla grew up in Baltimore and now studies politics at Sarah Lawrence College in New York. Kayla is a CF advocate who has been involved with Great Strides ...

Nathan’s partner, Megan, has cystic fibrosis. He is a graduate of the University of North Texas and teaches high school social studies. Nathan is new to participating in CF fundraising events but ...

Nic and his wife, Susan, live in Nashville, where he serves on the staff of the Rolling Hills Community Church. He's the proud father of two daughters (Lillie Cate & Nora Blake), one son (Simon, was ...

Vanessa is an educator, a volunteer, and a lover of Jesus. She has a bachelor’s degree in Christian education and advocates (part-time) for kids with dyslexia as an Academic Language Therapist.

Shannon is a 40-year-old woman with CF. She holds a master's degree in elementary education and works at the Tatnall School in Wilmington, Del., as the administrative coordinator and volunteers as the ...

Former Executive Vice President and Chief Operating Officer, Cystic Fibrosis Foundation Marc Ginsky was the executive vice president and chief operating officer of the Cystic Fibrosis Foundation.

Karen Carey is a Compass case manager. She has worked for the CF Foundation since spring 2015 and is based out of the Rocky Mountain Chapter. She was instantly inspired by the resolve of the CF ...

Crystal is a sister to someone with cystic fibrosis and currently serves as a board member with the South Carolina Chapter as the advocacy chair. She has a degree in business and works as a ...

Colton’s, -- who goes by his given trail name "Samwise" hiking career kicked into high gear In 2018 when he discovered the Pacific Crest Trail, a fickle beast of a hike running more than 2,650 miles ...