One of the hardest parts of working full-time with cystic fibrosis is the quiet exhaustion of navigating systems and expectations that were never designed for chronic illness.
I lived for decades struggling to breathe, adapting my life around what I thought were severe allergies. Then I was finally diagnosed with cystic fibrosis. With proper treatment and perseverance, I’ve ...
The Western New York Chapter of the Cystic Fibrosis Foundation welcomes you! Our chapter covers Buffalo, Rochester, and the surrounding areas. Volunteers are the key to our success and the lifeblood ...
It is important to always clean and disinfect your nebulizer because you can breathe in germs through your nebulizer and risk developing a lung infection. 3 min read Nebulizers are medical devices ...
Food insecurity is a long-standing problem in America. According to the U.S. Department of Agriculture (USDA), food-insecure households are those with “limited or uncertain access to adequate food.” ...
Trikafta® has done wonders for my health but not my waistline. I was relieved to find out, however, that I wasn't alone in my concern about my sudden weight gain and that bringing the topic up to my ...
The additional funding will support a Phase 2 clinical trial for an inhaled antisense oligonucleotide drug for people with cystic fibrosis who have the splicing mutation 3849+10Kb C-to-T. BETHESDA, Md ...
I've been thinking of my life after Trikafta as a series of pros and cons ... like on “Friends” when Ross made a list to figure out why he should/should not date Rachel. Ross needed to decide if he ...
The Cystic Fibrosis Foundation recently announced that there are almost 40,000 people living with CF in the United States. Not only are there more of us with CF, but we are now living longer. Based on ...
Nosis Bio, an inaugural winner of the Foundation’s Golden Ticket Competition, receives funding to further explore design of novel ligands, which are specialized molecules that could help more precise ...
BETHESDA, Md. (July 16, 2025) – Today, the Cystic Fibrosis Foundation announced an additional investment of up to $24 million in Prime Medicine to continue the development of a gene editing therapy ...
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