Columnist Jennifer Lynne reflects on a powerful event that kicked off this year's Hope Conference in Orlando, Florida.

Geneventiv said the FDA had "positive" feedback in a meeting on developing GENV-HEM, the company's gene therapy for ...

Inhibitors are one of the most severe complications of hemophilia. Caeleb’s complications didn’t stop with that diagnosis. He had at least eight ports, as they would become infected or break. Daily ...

Columnist G Shellye Horowitz writes that postponing factor infusions may be tempting, but prophylaxis is better than a bleed.

Columnist Allyx Formalejo reminds readers this National Epilepsy Awareness Month that some stories about epilepsy begin with ...

Healing takes time, writes columnist Jennifer Lynne, who has come to believe that there’s wisdom in slowing down in all things.

Biomarin Pharmaceutical is looking to sell off rights to Roctavian, its approved gene therapy for hemophilia A.

Collaboration between patients and doctors is crucial, says columnist Cazandra Campos-MacDonald, who stresses the value of meeting halfway.

Columnist G Shellye Horowitz learned the hard way that, as someone with hemophilia, surgical planning ahead of time is ...

Taking care of your teeth when you have hemophilia is about more than just brushing and flossing. As a bleeding disorder typically caused by genetic mutations that make it harder for blood to clot, ...

Columnist Allyx Formalejo explains what people miss when they praise someone for simply living with a disability.

Doctors discovered a rare combination of blood clotting disorders — acquired hemophilia A alongside an inherited disorder called Factor XII deficiency — in a 70-year-old man set to undergo a leg ...