One of the hardest parts of working full-time with cystic fibrosis is the quiet exhaustion of navigating systems and expectations that were never designed for chronic illness.
I lived for decades struggling to breathe, adapting my life around what I thought were severe allergies. Then I was finally diagnosed with cystic fibrosis. With proper treatment and perseverance, I’ve ...
The Western New York Chapter of the Cystic Fibrosis Foundation welcomes you! Our chapter covers Buffalo, Rochester, and the surrounding areas. Volunteers are the key to our success and the lifeblood ...
It is important to always clean and disinfect your nebulizer because you can breathe in germs through your nebulizer and risk developing a lung infection. 3 min read Nebulizers are medical devices ...
For years, I carried a collection of unexplained health issues that never quite added up. I didn’t cough, I didn’t wheeze, and nothing about me fit the traditional picture of cystic fibrosis. So when ...
I used to measure my life with cystic fibrosis and CF–related diabetes (CFRD) in numbers. Lung function. A1C. Blood sugars. Weight. Enzymes. Appointments. I learned early on that survival meant ...
I was born in Germany, and when I was 6 months old, my mother flew me to Washington, D.C. where I was diagnosed with cystic fibrosis. Growing up, I went to school just like any other student, but of ...
Help support Cystic Fibrosis Foundation today! Cystic Fibrosis Foundation is currently addressing a matter that temporarily affects our ability to accept payments from California residents, related to ...
mRNA therapy would deliver a new, correct copy of CFTR mRNA to cells, allowing them to produce healthy CFTR protein. This treatment would not affect a person’s DNA or CFTR mutations. mRNA therapy is ...
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