Cortney Gensemer, PhD on Instagram: "Spend the day in lab with me studying hypermobile Ehlers-Danlos Syndrome!"
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Cortney Gensemer, PhD on Instagram: "Spend the day in lab …
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Ph.D. student has rare disease. Her own research discovered a potential breakthrough.
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Ph.D. student has rare disease. Her own research discovered a potential breakthrough.
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Apr 4, 2022
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Cortney Gensemer, PhD on Instagram: "✨10 years since my Ehlers-Danlos Syndrome diagnosis✨ Almost a decade of learning, grieving and growing. Moments that have felt like the end, were often just the beginning. 10 things I’ve learned in 10 years with EDS: 1. Healing isn’t linear. 2. Grief can coexist with gratitude. 3. You can still do the things you want in life — just differently. 4. Rest is productive. 5. Community changes everything. 6. Boundaries are important. 7. Acceptance isn’t giving up.
Cortney Gensemer, PhD on Instagram: "✨10 years since my E…
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Proteomics analyses showed lower levels of several complement proteins in the blood of people with hypermobile Ehlers-Danlos syndrome compared to controls. Complement proteins are part of the innate immune system and help regulate inflammation and coordinate immune signaling. Immune dysregulation may be an important component to understanding hEDS. Check out the full study here: Griggs M, et al. Proteomic discoveries in hypermobile Ehlers-Danlos syndrome reveal insights into disease pathophysiol
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Proteomics analyses showed lower levels of several complement prot…
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Cortney Gensemer, PhD on Instagram: "Reducing complex disease to a party trick helps no one 🫶#ehlersdanlossyndrome"
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Cortney Gensemer, PhD | 💡 Did you know? The often-quoted prevalence of Ehlers-Danlos Syndrome (EDS) as 1 in 5,000 isn’t actually based on a study. *Always* check... | Instagram
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🤔 Could hypermobile Ehlers-Danlos Syndrome actually be an immune …
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This is just the start — research is finally catching up to what patient…
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